Works to improve the health of babies by preventing birth defects and infant mortality through programs of research, community services, education, and advocacy.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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The Mayday Pain Project works to increase awareness and to provide objective information concerning the treatment of pain.
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Helps support patients with meningitis and their families. Provides information to educate the public and medical professionals about meningitis about early diagnosis and treatment.
Supports and conducts research and related programs in the area of spinal cord injury.
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Dedicated to advancing a cure for Parkinson’s disease by identifying promising research and raising funds for research support.
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Works to improve quality of life for adults and children affected by mitochondrial disease and to raise awareness about mitochondrial disorders and their relationship to other diseases.
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Non-profit organization that provides individuals and families with a support network; promotes public and professional education about the disorder, and promotes and funds research.