National, non-profit organization that sponsors education, awareness, and support programs.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
Foundation established to aid in the development of therapies for Late Infantile Batten Disease.
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The National ALS Registry is a program to collect, manage, and analyze data about people with ALS in the United States.
Promotes the care, welfare, and rehabilitation of people with aphasia through public education and support of research.
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Non-profit corporation serving facilities that provide lodging and other supportive services to patients and their families when confronted with medical emergencies.
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Encourages and supports research into the hereditary ataxias, a group of chronic and progressive neurological disorders affecting coordination.
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Nonprofit organization committed to finding a cure for brain tumors; its mission is to aggressively drive strategic research, advocate for public policies that meet the critical needs of the brain
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Provides information to parents, professionals and individuals with learning disabilities, promotes research and programs to foster learning, and advocates for policies to protect and strengthen ed
Non-profit organization engaged in the procurement and distribution of human tissues and organs for biomedical researchers.