The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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Non-profit foundation established to help those afflicted with any of the various forms of dysautonomia.
National Dystonia
Non-profit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia by increasing the awareness of the public, media, go
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Provides support, education, awareness, research, and legislative advocacy for all Fragile X-associated Disorders including fragile X syndrome (FXS), fragile X-associated tremor/ataxia syndrome (FX
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Funds research for a cure and alternative treatments for Gaucher Disease; provides education, financial, support and mentor programs and advocates for legislation affecting the Gaucher and rare dis
Non-profit organization dedicated to service headache sufferers, their families, and the healthcare practitioners who treat them.
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Association of voluntary health agencies, businesses, and not-for-profit organizations.
Non-profit membership organization representing hospice and palliative care programs and professionals.