Supports those affected by Lewy body dementias through outreach, education and research.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
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LGS Foundation is a not-for- profit organization dedicated to providing information about Lennox-Gastaut Syndrome, a rare and severe form of childhood onset epilepsy, while raising funds for resear
Non-profit donor education organization. Maintains computerized records of donor data for future retrieval during emergencies.
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Provides information, fosters communication among families, and supports medical research on Lowe syndrome.
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Nonprofit voluntary health organization working to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health p
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Nonprofit medical healthcare agency dedicated to finding solutions to tick-borne disorders.
Offers up-to-date information, support, and education programs to patients, caregivers, and professionals, including printed materials, conferences and symposiums, webcasts, and teleconferences.
National nonprofit organization dedicated to helping children whose physical growth is affected by a medical problem.
Foundation that grants the wishes of children with life-threatening illnesses.