National center for information, training, research, and technical assistance in independent living.
Patient Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
Nonprofit organization that provides leadership for partnerships with global pediatric stroke communities for advancing awareness, knowledge, and research for babies and children who have been impa
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The International Alliance of ALS/MND Associations was founded in November 1992 to provide a forum for support and the exchange of information between the worldwide associations.
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Promotes effective teaching approaches and related clinical educational intervention strategies for people with dyslexia; supports and encourages interdisciplinary study and research; and facilitat
Provides educational information, funds research in tremor disorders, and offers services and support to individuals diagnosed with essential tremor, their families, and health care providers.
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Not-for-profit organization dedicated to education and research on RSD/CRPS.
The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information
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The International federation for hydrocephalus & spina bifida (if) is the world-wide umbrella organisation (NGO) for Hydrocephalus and Spina Bifida created in 1979 by national organisations of
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International non-profit that sponsors and funds medical research of idiopathic intracranial hypertension (old name pseudotumor cerebri) and secondary intracranial hypertension.