Virtual | December 20, 2021 | 1-5 pm ET
NINDS is a member of the Muscular Dystrophy Coordinating Committee (MDCC), a Federal Advisory Committee including NIH institutes, other Federal agencies, and patient advocates. The MDCC identifies the many challenges confronting people with muscular dystrophy and their families and coordinates efforts to address them.
Agenda
Time | Presentation |
---|---|
1:00 – 1:10 |
Introductions and general information |
1:10 – 1:30 |
Chair Presentation |
1:30 – 2:15 |
New Member Presentations |
2:15-2:30 |
Update on Medicare Coverage for BiPAP |
2:30-2:45 | Break |
2:45 – 4:15 |
“Strategies to Increase Inclusion of Racial and Ethnic Minorities in Research Studies” Session Introduction An FDA Perspective: Advancing Racial and Ethnic Minority Participation in Clinical Trials Prevalence and Disparities in Muscular Dystrophies Community Engagement in Translational Research: Our Experience in Puerto Rico Studying Pediatric Rare Lung Diseases” |
4:15 - 4:55 |
Panel Discussion of Diversity in Research Studies Session Presenters |
4:55 |
Closing Remarks |