Patient Organizations

This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.

 

Non-profit health organization providing diabetes research, advocacy services, and information, including information on the complications of diabetes, such as diabetic neuropathy.

A 501(c)(3) public foundation whose mission is to dramatically improve the lives of people living with peripheral neuropathy, to be the catalyst for advancing innovative therapeutic developments an

Dedicated to raising awareness, funding innovative research and improving quality of life for those with Charcot-Marie-Tooth (CMT) disorder, their families, and caregivers by offering medical infor

Funds scientific research for treatments and a cure for infantile neuroaxonal dystrophy and other forms of PLA2G6-related neurodegeneration.

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