Patient Organizations

This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.

 

Dedicated to funding research and educational activities relevant to discovering cause, cure, and evidence based care for individuals with CP and related developmental disabilities.

National nonprofit organization to optimize the lifelong health and wellness of people with cerebral palsy and their families through high quality research, educatio

CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers and healthcare professionals on prime of life neurodegenerat

Non-profit organization that offers an information clearinghouse and support network for families affected by Sotos Syndrome, or cerebral gigantism.

Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.

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